Maria had a surgery yesterday! It is an experimental surgery that right now is being performed only in Spain and Poland, in Katowice. Maria is a beautiful 34 year old woman with 2 little kids. Her MS was moving fast. She red about this surgery online, and went to have it done . It is called “Liberation surgery” . Here is a bit about it from a blog :
“An Italian doctor figured out a link between blood flow in the brain and MS. All the people he has tested who have MS have constricted veins from their head.
Essentially, this is like having your plumbing backed up and shit leaking all over the place. On those he’s performed treatment on, they have decreased relapses and better quality of life.”
Here is some more from another blog:
“My wife and I are going to Poland at the end of March for the Liberation treatment. The doctor there is so overworked that he is no longer taking patients. They are building a new facility to handle all the potential patients.
She had her tests done at False Creek in Vancouver. It shows a very small left jugular vein. She’ll probably need the whole vein stented to open it sufficiently.
Since I first posted there have been a lot of changes and support for the testing and treatments. Lots of universities are starting to do research now. The Buffalo study is proceeding to stage 2 and wants the authority to do testing of people off the street outside of the study.
A good place to start is ThisisMS to get an overview.
Also, the Facebook site CCSVI is an excellent source of information. The person who runs it, Joan Beale, was essential in getting CCVSI brought to North America and getting Standford doing the first study here.”
We are all anxious and thrilled and looking forward to see her back at home in a week.
Hi , my name is bruce, I have ms , slow moving right now prior to ms I had a tumor removed from my throat about the size of an egg, following this surgery approx 3 years I find out I have ms , after now being on avonex for about 1 year and hearing the breakthrough surgery from Dr Zambonie it give me hope. But here in Canada there are not interested in doing anything until they run out of drugs at least thats what I see. I see a lot of people raising money to help and that is great but when there is light at the end of the tunnel to help some then why not help them ? this is the question I have ! If only 10 are helped then why not help them ? Is there a reason for their hardness of not wanting to help those that are asking for help I have the answer its money , power , ego ,all on the side of those that have the power kinna looks and smells like rotten politics thats how I feel maybe its a good things to have ms because it makes you look at the big picture with a concern because you have ms its not comfortable to have this problem but the way this world works with all its problems it is only a matter of time before it will only be something else , my point is life is good and there are a lot of good people in the world trying to help the one that need help if I could only say one thing to those that have the power to make an effective change to policy would be “take your foot off the brake” let my people go ! amen
March 26, 2010 at 7:37 am
Hi , my name is bruce, I have ms , slow moving right now prior to ms I had a tumor removed from my throat about the size of an egg, following this surgery approx 3 years I find out I have ms , after now being on avonex for about 1 year and hearing the breakthrough surgery from Dr Zambonie it give me hope. But here in Canada there are not interested in doing anything until they run out of drugs at least thats what I see. I see a lot of people raising money to help and that is great but when there is light at the end of the tunnel to help some then why not help them ? this is the question I have ! If only 10 are helped then why not help them ? Is there a reason for their hardness of not wanting to help those that are asking for help I have the answer its money , power , ego ,all on the side of those that have the power kinna looks and smells like rotten politics thats how I feel maybe its a good things to have ms because it makes you look at the big picture with a concern because you have ms its not comfortable to have this problem but the way this world works with all its problems it is only a matter of time before it will only be something else , my point is life is good and there are a lot of good people in the world trying to help the one that need help if I could only say one thing to those that have the power to make an effective change to policy would be “take your foot off the brake” let my people go ! amen
Great to see the different views being spread on here! Try to smile, laugh and enjoy each and every day! CCSVI needs to be explored further
I am ensnared with the notion of the liberation treatment to cure multiple sclerosis. From what data I can accumulate about places that provide treatment, I can only find one nebulous collection repeated on a dozen websites. Is there a more preferable way to locate treatment, per say in North America. There are places that offer Liberation Treatment for the United States that no one knows about, such as Liberation Treatment Now
I am thrilled with the idea of the liberation treatment to treat multiple sclerosis. From what information I can gather about doctors that offer treatment, I can only find one nebulous list repeated on a dozen websites. Is there a more preferable way to find treatment, per say in North America. There are places that offer Liberation Treatment for the United States that no one knows about, such as Liberation Treatment Now
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